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Young Adults Surviving Glioblastoma

YASG Discussion forum. Feel free to post anything; information, new treatments, support.

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Revi



Dec 29, 2006 - 1:35PM
Where's Sally/MIindy/Patrick/Phil from NJ??

Sally, how's everything???

Mindy, how's Chance?


Phil and Patrick, how are you feeling???


Is everything okay????

Just checking in and making sure everyone's still hanging in there...
Email   ReviBug  
Mindy, TX



Dec 29, 2006 - 2:07PM
Re: Where's Sally/MIindy/Patrick/Phil from NJ??

Hey girl,
We're still here. :) I've been on the site at least once a day, I just haven't had much to say. Chance is doing great. He had a really hard time weaning off of 2 mg. of dexamethasone, so he's back on them until we see the doc. on Jan. 4th. We also go then for a MRI. He had a really bad reaction to being off the steroids and ended up in the ER for a few hours. He had a horrific headache, vomitting, and even a small seizure about 3:30 on Dec. 18th. He was very disoriented. I called the oncologist that moring when they opened, and she said to take him to the ER for a Catscan to rule out bleeding in the brain, otherwise, she was sure he was just having a bad reaction b/c he has been on them since Sep. The Catscan looked great, no tumor or no swelling even. So...he's back on 4mg of Decadron a day until we see her on the 4th, and then he will start weaning off VERY slowly. Other than that, minor incident, Chance and I are both great. I'm just enjoying my time off from school away from my darling little 4th graders. Thanks for asking Revi. :) P.S. Sally has been visiting family out of town.
Phil from NJ



Jan 2, 2007 - 1:34AM
Re: Where's Sally/MIindy/Patrick/Phil from NJ??

Fine here. I lurk unless I have news to share or a post to respond to. No MRIs or anything for a month. Feeling fine.